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"Wishes cost nothing, unless you want them to come true."
Medical advances most likely happen when people explain that they need help, and then take steps to make sure that help is forthcoming. It is not just the number of people who are ill that makes a difference, but the number of people who strategically speak out that makes an impact. Wishing that “they” find answers doesn’t work – but explaining your needs to the persons who fund, regulate, and perform research does work.
Much has happened over the past 20 years to raise awareness and understanding of these conditions. Much more needs to be done to address the needs of people affected, improve care, and one day find cures. We want to see advances happen faster and in greater number.
Helping people understand the impact and importance of these disorders in your community leads to a better understanding of the unique needs of people affected by FGIMDs. Lend your voice and help break the silence surrounding FGIMDs.
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