As a nationwide grassroots network our power to create meaningful change is rooted in individuals and families across the country. These advocates use the story of how FGIMDs have impacted their life to educate lawmakers about the conditions and to encourage them to take legislative actions and craft public policies, which support the FGIMDs community. By working together in a coordinated fashion, we leverage the strength of our numbers behind efforts to bolster federal funding for research activities and improve care for patients.