Progress starts with you. Join the effort to improve treatment options and find cures by getting active.

 
Educate others to improve understanding and acceptance of these conditions.
Advance medical science by personally contributing to research efforts.
Reach out to lawmakers and encourage them to support our community.

Learn more about our pediatric research consortium
Learn more about our research grants & awards program
See how others have been getting active in their communities
Read about the latest public policy developments from Capitol Hill